Team Maryn

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Maryn was born in March of 2013, looking surprisingly healthy for having been diagnosed in utero with rare congenital heart defects (Truncus Arteriosus, a VSD & an ASD). Maryn had her first open heart surgery at 9 days old, a couple of weeks later it was apparent that her heart was still not working as it should, forcing her second open heart surgery when she was 4 weeks old. Maryn's second surgery seemed to be the key to getting Maryn home, but something still wasn't right and she remained in the hospital.

In the beginning of August 2013, Maryn was evaluated for a heart transplant, although it was determined she was not a candidate due to her 22q11.2 Deletion Syndrome and her over 40 blood transfusions. Unfortunately, her health continued to deteriorate. Thursday, August 29, 2013 our world came crashing down when we were told not to expect Maryn to survive the weekend; if she did survive, and was healthy enough for surgery, her medical team gave her a 5-10% chance of surviving the double valve (aortic & pulmonary) replacement she needed. Maryn fought hard and made it through the weekend, then miraculously, on her 6-month birthday, her amazing medical team was able to successfully replace both valves and Maryn came home for the first time 218 days after she was born.

Maryn is now 6 years old, she has overcome many obstacles and is currently thriving! She enjoys swimming, music, dancing, soccer, her iPad and most of all her brother. Maryn still struggles in some areas and will need more surgeries (heart, GI, and others) as she continues to grow, but at this point we are enjoying our life with our miracle Maryn.